We have started a cooperation with Chittagong Hospital in Bangladesh in order to increase survival rate and especially to support chemotherapy for children with extra ocular disease. Dr. Soma Rani Roy is an ICO fellow from Bangladesh, she completed 3 months fellowship in Retinoblastoma from 1st July to 30th September 2016 at L. V. Prasad Eye Institute, under supervision of Dr. Swathi Kaliki, director of the Operation Eyesight Universal Institute for Eye Cancer in Hyderabad, India. She has now returned to Bangladesh to treat RB children with the knowledge she has gained through her KAKS fellowship.

KAKS aim is to support research projects in a field, where either due to the rarity of the disease or/and lack of patent protection, commercial interest is basically non-existent. In 2015, KAKS initiated, financed, supported and completed retinoblastoma based research projects in search of for innovative therapies and diagnostic methods.

We organize annual RB meetings with workshops and a huge kids’ party. Participants are young and adult RB patients and their families, doctors, psychologists, teachers, coaches, grandparents, siblings, experts and Elli.